Tuesday, May 5, 2020

Radiation Update • 5/04/2020

Can I ask for big prayers and love and a big push for Grady to finish and beat this?!! He completed 22 of 35 radiation treatments!! πŸ™ŒπŸ»He will be done May 21st!!!

His skin is getting very red and painful. It hurts him to swallow. He still has a harsh raspy voice, BUT the steroids seem to be helping.

His doctors are very impressed with how his
body is handling everything.

We have a Meal Train Link and GoFundMe Link still active.

6 weeks of quarantine, so I get it. πŸ₯°
And still, we have seen SO much love ❤️ and support. Keep praying πŸ™πŸ» for G please. Thank you for all the support. Especially during this crazy time in life for everyone.

πŸŽ—✨ πŸ’™


#pmmti #myxoidtumor #pmmtiawareness

Wednesday, April 15, 2020

Update, also please check FaceBook! • 4/14/2020

Hello all those who are supporting and cheering on Grady! Sorry I have done a terrible job at updating here. I think enough people are asking and helping me spread the news of what’s going on. I’ve been pretty decent at updates on his FaceBook page. @gratefulforgrady
I know not everyone has FaceBook, so I’ll get a few more updates here soon!

** Grady is on his second week of radiation. So far he is handling it well. 5 weeks to go. I take him 5 days a week. Many many side effects are possible and some pretty much guaranteed. And the side effects are some what unexpected and unusual to me. So we would love prayers and support in this area. His treatment should not be effected at all by the Covid crisis though. They swabbed him today just to be proactive and safe, and are taking lots of extra precautions, but radiation really isn’t something you can take a break from.

We are counting our blessings during this time. And we have had a lot of blessings. ❤️

Wednesday, January 29, 2020

Milestone!!! 1/29/2020

Last day of chemo for Grady today!!!
He did it! We did it! πŸ™ŒπŸ»πŸ’ͺπŸ»πŸ’š⭐️πŸŽ—

This step is complete! We’ve got a few more months to go of treatment but we can see the end!

End of February will be scans and surgery. Shortly after he will start radiation.

πŸŽ—✨ πŸ’™


#pmmti #myxoidtumor #pmmtiawareness

Wednesday, January 15, 2020

Update • 1/15/2020

No fever for Grady! πŸ™πŸ» We are at an appointment now, he woke up not feeling great and it is common for him to get a fever the week after chemo. His ANC is only 30 but no fever so that is awesome! Pray it stays that way. We are hanging out a little longer while he gets platelets today.

He was very fearful/anxious in the car this morning on the way here. After we dropped Reece off at school and I turned in the opposite direction of home, his eyes just filled with tears. 😭 It breaks my heart more every time. I try to prepare him the best I can each night before hospital day, but he really doesn’t like it, of course.
He did great for vitals though and let the nurse do everything she needed to, and even sat alone on the chair, which is huge! Although, getting his port accessed is a completely different experience. I’ll never take pictures of that.

Also, Reece let me pick out his clothes and do his hair this morning! πŸ’š Isn’t he so cute?!

πŸŽ—✨ πŸ’™


#pmmti #myxoidtumor #pmmtiawareness

Friday, December 27, 2019

Christmas Update! 🎁 ❤️πŸ’šπŸ™πŸ»✨ 12/27/19

We all had an amazing Christmas HOME with family! Prayers were answered and Grady was feeling well and very energetic!

Thank you to each and everyone of you who helped make this Christmas so special! We have struggled with how to thank everyone properly. Please know nothing has gone unnoticed or unappreciated. We received so many gifts for the kids and Jason and I. Financial support, not only for Grady’s care but for Christmas and date nights for us. Many of you have brought meals or asked for my grocery list.
The GoFundMe has blown us away. Our local Farmers Market community all pitched in to support us.
And we were beyond blessed and humbled to receive a very large check from our entire Phoenix community on Christmas Day. A local bar (McKenzie’s Midtown Tavern) held a fundraiser and our community gifted us over $20,000! πŸ˜­πŸ™πŸ»❤️πŸ’š Jason and I have never felt alone in this. Thank you all!

We also received news the day after Christmas that Grady’s treatment is going according to plan. His tumor has shrunk as hoped! He will have two more cycles of
Chemo, followed by surgery. A short recovery and then radiation will complete treatment. That’s the plan and we’re sticking’ to it!! πŸ™ŒπŸ» This is incredible news as less than half of PMMTI cases responded well to the chemo treatment.


Monday, December 9, 2019

Update • 12/09/19 ❤️πŸ’š

Here is a video of Grady two days ago. Wow what a difference 2 days can make. 

Today was very different, definitely a harder day, seeing Grady so lethargic, just laying on me most of the day. We headed back to the ER Sunday night, Grady had a fever. This is unfortunately becoming a common thing for him after chemo weeks. He was admitted again. Fluids, antibiotics, blood transfusion, other things no one wants to read about on social media πŸ’© , and finally a chocolate doughnut 🍩, and he was feeling a little better by dinner time tonight. Let’s pray the fever stays gone. It makes for long nights when the nurses and doctors are constantly monitoring him. We expect to be here 3-5 days. And we really really pray we get a Hospital break over Christmas πŸŽ„!

πŸŽ—✨ πŸ’™


#pmmti #myxoidtumor #pmmtiawareness

Tuesday, December 3, 2019

Update • 12/03/19 • Grady on the News 🚲

Click * HERE * to see what an awesome community we have. Grady was on the news last night. A local bar is raising money for him. I love to see how the restaurant industry is getting behind Jason and supporting him through this! He has so many restaurant/bar regulars always asking him how things are going and helping him any way they can. Thank you all so much. πŸ’š❤️

πŸŽ—✨ πŸ’™


#pmmti #myxoidtumor #pmmtiawareness 

Saturday, November 30, 2019

Update • 11/30/19

Today is day two of inpatient chemo. We will be here 6 days this stay. This is cycle 4, with 3 more to go. Grady has another scan scheduled for December 16 and we are really wanting to see the tumors smaller by then. I think it looks smaller πŸ™πŸ». Surgery and radiation will be towards the end of his chemo schedule if everything goes as planned.

Please pray Grady doesn’t get a fever after this week of chemo. We want to stay out of the hospital as much as possible in December because when it’s flu/RSV season no visitors under 12 are allowed at the hospital.  We would hate to be here over Christmas and not be able to all be together as a family.

Thank you for all the continued prayer and support.

πŸŽ—✨ πŸ’™


#pmmti #myxoidtumor #pmmtiawareness

Friday, November 15, 2019

Update • 11/15/19

For those of you following on this blog, I also post on FaceBook at @gratefulforgrady 
Sometimes I add quick updates there, if you’re checking in on Grady. 

Grady is doing pretty well, we had a good week but ended up in the hospital for a fever Wednesday night. Grady will probably be here until Saturday or Sunday. The fever didn’t last, but they always have to keep him for a few days to be sure he has no infections. 

Other than that, not much has changed. Grady has good and bad days. Last week he came hiking with Reece and I and had some great energy, but yesterday he sat and watched movies all day and didn’t eat much. It does make a big difference if we are home or not. He has better energy and appetite when we are home. 

Thanks for all the prayers and food and financial help. We appreciate it all and definitely need you all during this. πŸ’™

Wednesday, October 30, 2019

Update • 10/30/19 Back in the Hospital

We are back in the hospital after only 5 days home. Grady started feeling bad Monday and we came to the ER with fever last night. He just has a common cold, but they have to take extra precautions when his blood counts are so low. They were basically zero when we checked into the hospital last night. Antibiotics and fluids. Grady has to stay until no fever and his blood counts reach a certain limit.
He’s really doing pretty good, just extra lethargic and pale. It’s just hard being in the hospital and not home.

Grady this morning having some breakfast. Still with a fever, but sleep helps for sure! 

Grady’s Diagnosis

Well here we are... this is hard for me to share, but I’ve learned from many past experiences that bringing community into our struggles is ...