Tuesday, December 3, 2019

Update • 12/03/19 • Grady on the news

Click * HERE * to see what an awesome community we have. Grady was on the news last night. A local bar is raising money for him. I love to see how the restaurant industry is getting behind Jason and supporting him through this! He has so many restaurant/bar regulars always asking him how things are going and helping him any way they can. Thank you all so much. 💚❤️



🎗✨ 💙

#GratefulForGrady

#pmmti #myxoidtumor #pmmtiawareness 

Saturday, November 30, 2019

Update • 11/30/19



Today is day two of inpatient chemo. We will be here 6 days this stay. This is cycle 4, with 3 more to go. Grady has another scan scheduled for December 16 and we are really wanting to see the tumors smaller by then. I think it looks smaller 🙏🏻. Surgery and radiation will be towards the end of his chemo schedule if everything goes as planned.

Please pray Grady doesn’t get a fever after this week of chemo. We want to stay out of the hospital as much as possible in December because when it’s flu/RSV season no visitors under 12 are allowed at the hospital.  We would hate to be here over Christmas and not be able to all be together as a family.

Thank you for all the continued prayer and support.


🎗✨ 💙

#GratefulForGrady

#pmmti #myxoidtumor #pmmtiawareness

Friday, November 15, 2019

Update • 11/15/19





For those of you following on this blog, I also post on FaceBook at @gratefulforgrady 
Sometimes I add quick updates there, if you’re checking in on Grady. 

Grady is doing pretty well, we had a good week but ended up in the hospital for a fever Wednesday night. Grady will probably be here until Saturday or Sunday. The fever didn’t last, but they always have to keep him for a few days to be sure he has no infections. 

Other than that, not much has changed. Grady has good and bad days. Last week he came hiking with Reece and I and had some great energy, but yesterday he sat and watched movies all day and didn’t eat much. It does make a big difference if we are home or not. He has better energy and appetite when we are home. 

Thanks for all the prayers and food and financial help. We appreciate it all and definitely need you all during this. 💙



Wednesday, October 30, 2019

Update • 10/30/19 Back in the Hospital

We are back in the hospital after only 5 days home. Grady started feeling bad Monday and we came to the ER with fever last night. He just has a common cold, but they have to take extra precautions when his blood counts are so low. They were basically zero when we checked into the hospital last night. Antibiotics and fluids. Grady has to stay until no fever and his blood counts reach a certain limit.
He’s really doing pretty good, just extra lethargic and pale. It’s just hard being in the hospital and not home.


Grady this morning having some breakfast. Still with a fever, but sleep helps for sure! 









Saturday, October 19, 2019

Update • 10/19/19

Grady is inpatient again for another week of chemo. This is looking like the new normal for us. We will have scheduled inpatient stays about every 2-3 weeks for a week at a time.

It’s hard being at the hospital. None of us like it and I miss Reece. Grady has been having crazy tantrums, likely just because he doesn’t like being here. But I’m sure he doesn’t feel awesome and he hates always being told he has to do something he doesn’t like.

Short update. Honestly, I’m just grumpy and this all sucks. Maybe it’s ok to just feel like that once in a while too 🤷‍♀️


Never too big to sleep in my lap 😍

Friday, October 11, 2019

Update - 10/11/2019

Great news, Grady's blood counts sky-rocketed this morning! This would all be normal except we are having some confusing test results from the lab regarding infection and bacteria growth with his port placement. Pray it's nothing and we head home today! 

Jason and I watched a movie and ate Mexican takeout at the hospital last night for our 4th wedding anniversary 💗 Not our first choice, but still ok. Oh, and a friend smuggled us in a bottle of champagne 😉

Grady had his third week of chemo today. 3 down, 20 more(ish) to go! 






 

Tuesday, October 8, 2019

Update • 10/08/19

Last night we ended up in the ER. Grady had a fever and wasn’t eating or drinking all day. They immediately got fluids in him and checked his blood counts. Blood counts were super super low. They admitted Grady (again). I guess it’s very common for blood counts to drop at this stage, not necessarily bad, but with the fever we have to be extra careful for infection. He’ll stay in the hospital until his counts reach a certain level again. He’s getting antibiotics and lots of fluids. His fever is down already and he ate a few bites of lunch. They still said it’s likely we’ll be here the rest of the week. Also, he got his first haircut yesterday! 💕


❤️ Nicole 

Tuesday, October 1, 2019

Update • 10/01/19

Day 3 of chemo. I guess we just really didn’t know what this all entailed. We are going on day 5 at the hospital. Hopes of going home late tomorrow. Today is the first day Grady just really doesn’t seem himself. The color is gone from his face and he just wanted to snuggle in bed and rest his head on me. He did play in the toy room for a while, and had a few bites of oatmeal for breakfast. He’s still a little stinker of a two year old, so even though it’s frustrating at times we can be thankful for that spunk.
I left the hospital for a bit today. When we checked into the hospital, it was a hot summer day and now it’s beautiful fall weather here in AZ. It makes me anxious to get home and sit in the backyard.

I’ll keep the updates coming as I can. Thank you everyone for praying.


Grady got to meet Spider Punk while getting chemo yesterday ☺️

Sunday, September 29, 2019

Update • 9/29/19 • Treatment Has Started

It has been a very long journey up until this point. Thank you to everyone who has been praying and walking along side us. 

Crazy to say it’s been a long journey because Grady just started chemo today. 

I received a great compliment Friday when the social worker at our Oncologist visit declared I should get a reward for the greatest advocate. I’ve been working so hard this past month, and especially last week to actually get Grady’s treatment started. His tumors were growing so fast, but because of our crazy healthcare system it took this long to get him into the hospital. We had a lot of mixed emotions while being admitted into the hospital Friday afternoon. I was so happy Grady was finally going to be  treated, but also feeling so scared at how. Chemo is a very scary thing to us. 

Grady had his port placed Saturday. They prepped his body with fluids the rest of the day and he started chemo this morning. We will be here until Tuesday. He will get another chemo Monday and Tuesday morning. 

Grady is doing great. He doesn’t have an appetite and he’s sore after his surgery, but otherwise he’s the very spicy, silly, determined two year old we all know. 

Reece has been able to visit a lot. He loves all the snacks and toys. He’s definitely concerned about his brother but he’s doing great and understanding what’s going on. So thankful for my parents this week helping take care of him and juggling all the logistics involved. 

Let’s call this the beginning of part 2 of our temporary journey! 

Please pray Grady handles the meds well and bad side effects are minimal. Pray for Jason and I that we stay strong as a team. Pray for Reece that he feels loved and supported through this. 

Thank you,
🎗❤️ Nicole


Pete the Cat came to visit (aka Grandma). 



Saturday, September 14, 2019

Update • 09/14/19



I want to start by thanking everyone for all the support and prayers as we wrestled through this past few weeks! It has meant the world to Jason and I. ❤️

We have decided to move forward with Chemotherapy for Grady. We have had doctors across the country review his case. Typically they have presented him in front of sarcoma groups and conferences. We have to move forward trusting our doctors. It's a hard choice knowing all the not-so-great side effects of chemo. At this point, anyone who sees Grady would think he is nothing shy of a healthy, happy, energetic 2 year old.

We are waiting for health insurance before Grady starts his treatment. We expect that will be within 1-3 weeks. This is messy and complicated. I don't want to share publicly on the world wide web but I'm more than willing to share if you're interested.  Maybe some of you have this all figured out!

It sounds like Grady's treatment plan will consist of chemo once a week for 6 months. The plan is that it will all be outpatient, so that's good news. He will have to get a port installed first. (Installed? I don't know🤣.) We plan to finish treatment with radiation.

Please pray for our family as we navigate what this temporary journey will look like. Please pray for Grady's big brother Reece, that he understands what's going on and expresses his emotions in a positive way. His best friend and playmate is about to get very sick.

Again, thank you. We need every one of you.

❤️Nicole
(Grady's mom)

Friday, August 30, 2019

Grady’s Diagnosis

Well here we are... this is hard for me to share, but I’ve learned from many past experiences that bringing community into our struggles is ...