Update • 10/30/19 Back in the Hospital

We are back in the hospital after only 5 days home. Grady started feeling bad Monday and we came to the ER with fever last night. He just has a common cold, but they have to take extra precautions when his blood counts are so low. They were basically zero when we checked into the hospital last night. Antibiotics and fluids. Grady has to stay until no fever and his blood counts reach a certain limit.
He’s really doing pretty good, just extra lethargic and pale. It’s just hard being in the hospital and not home.

Grady this morning having some breakfast. Still with a fever, but sleep helps for sure! 

Update • 10/19/19

Grady is inpatient again for another week of chemo. This is looking like the new normal for us. We will have scheduled inpatient stays about every 2-3 weeks for a week at a time.

It’s hard being at the hospital. None of us like it and I miss Reece. Grady has been having crazy tantrums, likely just because he doesn’t like being here. But I’m sure he doesn’t feel awesome and he hates always being told he has to do something he doesn’t like.

Short update. Honestly, I’m just grumpy and this all sucks. Maybe it’s ok to just feel like that once in a while too 🤷‍♀️

Never too big to sleep in my lap 😍

Update - 10/11/2019

Great news, Grady's blood counts sky-rocketed this morning! This would all be normal except we are having some confusing test results from the lab regarding infection and bacteria growth with his port placement. Pray it's nothing and we head home today! 

Jason and I watched a movie and ate Mexican takeout at the hospital last night for our 4th wedding anniversary 💗 Not our first choice, but still ok. Oh, and a friend smuggled us in a bottle of champagne 😉

Grady had his third week of chemo today. 3 down, 20 more(ish) to go! 

 

Update • 10/08/19

Last night we ended up in the ER. Grady had a fever and wasn’t eating or drinking all day. They immediately got fluids in him and checked his blood counts. Blood counts were super super low. They admitted Grady (again). I guess it’s very common for blood counts to drop at this stage, not necessarily bad, but with the fever we have to be extra careful for infection. He’ll stay in the hospital until his counts reach a certain level again. He’s getting antibiotics and lots of fluids. His fever is down already and he ate a few bites of lunch. They still said it’s likely we’ll be here the rest of the week. Also, he got his first haircut yesterday! 💕

❤️ Nicole 

Update • 10/01/19

Day 3 of chemo. I guess we just really didn’t know what this all entailed. We are going on day 5 at the hospital. Hopes of going home late tomorrow. Today is the first day Grady just really doesn’t seem himself. The color is gone from his face and he just wanted to snuggle in bed and rest his head on me. He did play in the toy room for a while, and had a few bites of oatmeal for breakfast. He’s still a little stinker of a two year old, so even though it’s frustrating at times we can be thankful for that spunk.
I left the hospital for a bit today. When we checked into the hospital, it was a hot summer day and now it’s beautiful fall weather here in AZ. It makes me anxious to get home and sit in the backyard.

I’ll keep the updates coming as I can. Thank you everyone for praying.

Grady got to meet Spider Punk while getting chemo yesterday ☺️